Who Can Interpret These Doodles?

 

Bob has recently been enjoying some doodling and artwork after many months of not being engaged at all in this type of activity.

I know we have some Art Therapy people in our group and I was wondering if someone can read into the attached doodles.

Bob’s wife is called Jan, he had a friend recently visit called Vic. He also appears to write $ signs, plenty of circles and what looks like guitar strings?

Anyway… Thought I would put this out there and see what happens:-)

Thanks

PS – I believe the flower and smiley face may have been drawn by my sister.

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SA Hospital Crisis Rally with Nick Xenophon

Today I went to a rally to support the saving of the Queen Elizabeth Hospital. I am normally the last person to get involved in politics or rallies. Having said that – I have toured the wards that are about to be shut down and know first hand how it will impact on our aged community. They just don’t know it yet.

We are about to lose a world class Geriatric unit and it’s gardens (GEM) and this means the dementia patients will now be forced into general medical beds which could be next to YOU. Dementia patients can have violent and inappropriate behaviours and require security teams on multiple occasions.

The public are generally unaware that all our geriatric wards are being removed from the RAH and downsized at the QEH. Cardiac and other wards are also impacted. Nick Xenophon and Prof Warren Jones were really supportive of the rally and were calling for action.

To see this story in detail watch your favourite news on tv ( any channel – they were all there) .

*ABC News is at 7pm if you missed the others.

https://m.facebook.com/SavetheQEH/

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I Spent All Morning Talking About Older People Having Sex!

Today I was involved in an international webinar with Rhonda Nay (La Trobe University) about SEX. This subject rarely comes up about people with dementia as it considered a taboo topic. I actually found the webinar to be very interesting indeed. I want to convey what I learnt in a simple and respectful manner so I thought I would share some points and stats.

People aged 80 -102:

30% females and 63% males have intercourse
10% females and 29% males have it often

Health professionals rarely talk about sex issues with their older patients.

Sexually aggressive behaviour with people with dementia rarely occurs.

Many of the concerns in regard to sex and people with dementia relate to ‘consent’ and ‘duty of care’.

“It’s not about our views…but their civil rights. We’re here to create an environment to allow grown ups to do what grown ups do.” (Bonfazi 2000,24)

Drugs such as anti psychotics, anti depressants etc have a negative impact on sex.

I asked the following question:

Q: “What do you do if you walk in on a resident having sex with another resident?

A: If the residents are happy….walk out, close the door and let them get on with it!

There is no need to report residents having sex if everyone is happy.

Carers need to have a sense of humour with showering and avoid potential ‘awkward’ situations.

People rarely have showers with other people in normal situations (in the cubicle) hence a person with dementia may confuse having a shower with a carer involved, as ‘sexual’.

Carers need to be wary of their language with residents as it may be misinterpreted.

example1: “C’mon John…Let’s have a shower together” (this may be taken as ‘sexual’ by resident)

example 2: “C’mon John …I will help you have a shower” (less chance of misinterpretation)

**conversations about sexuality and policies should be had with nursing home management PRIOR to them entering the aged care facility…this will avoid any problems in the future.

As carers we need to monitor body language very closely to ensure the person is ‘happy’ with situations. They may not be able to verbalise things, but they can certainly express themselves in other ways to let us know how they feel.

Fact: A female carer has filed a sexual harassment suit against a man with dementia for kissing the back of her hand. (In care situations – We need to keep things in perspective as well)…hmmm

 

Music To His Ears….What A Classic

I talked a few weeks back about a resident in the nursing home called ‘Barney’ who loves classical music. He had escalating behaviours but was able to be calmed by changing his environment with classical music.

Today at the nursing home every resident was unable to watch television due to building works and I believe the hot water was also affected. I decided to visit the home this afternoon to help with the residents as I thought they may be bored and need some extra lifestyle activities.

When I turned up the entire place was “angry” with residents protesting and demanding to know why they were in the building. Some refused to participate in activities until they were given a good reason why they were there, and were encouraging others to fire up. The lifestyle carer had no control of the group, as she was difficult to understand (due to her struggling with english) and was frustrated and appearing ‘snappy’ with residents. The residents could feel her tension and were reacting accordingly and began arguing . I took over some of the ladies and we played cards, and I whipped up a very simple game of ‘snap’.

Resident Barney looked lost and distant and was aimlessly walking in circles. I decided to once again change his environment and walked him back to his room. I knew he loved his music so I sat him in his comfy chair and asked him if he would like his favourite classical music played? He smiled and said “yes please”.

I then could not get his stereo to work and after several minutes was struggling to get any music to play. I was determined to get to the bottom of the problem. I pressed nearly every button with no success. In desperation I then wiggled the speaker wires and a short burst of sound was heard…SUCCESS! I re- set the wiring in the speakers and the music poured out.

Barney instantly closed his eyes…smiled…and said “isn’t Beethoven amazing?”. He shook my hand and I left him to his music. My big question is ” how long was his music system not working for?”. I would suspect days (if not weeks) as all the buttons were on with no sound coming out.

If music is Barney’s No. 1 passion, then as carers we need to be switched on to ensure that everything is in working order for him when it comes to his music. I could tell carers had tried to turn the music system on without success, but had given up. Did someone report it to maintenance or family members? Did anyone think that maybe Barney may no longer have music in his daily life until this is fixed?

These small things may seem insignificant at the time as it is not an ADL, but I want to highlight that televisions and music systems are often the most treasured possessions in people’s lives and we should ensure they come on each morning to set the right mood and tone for each day. This helps us care for them better…..

**FURTHER LESSON:
When the residents were angry and were demanding to know “why they were there” and “when they were going home”
 
I possibly answered the wrong way. I said ” you have been here several weeks now and this is your new home. You love it here”. This did not really calm them but perhaps gave them a further reason to argue.
 
After researching this situation it is suggested to say, “You have an apartment to stay here whenever you want. You are just staying with us until your _____ (insert ailing body part here) is healed.” ( or something similar eg. House is being painted.
 
The best way to tackle the ” I want to go home” situation is to FACE IT not evade it. Another example:
 
“We wanted to introduce you to some of the people here, so you could meet some new friends. You will be going home in a few days.
 
The above option would have been best on this occasion as I had multiple residents asking the same question at the same time. This probably would have worked best as I am a trusted face and the answer is possible and more plausible.
 
This dementia stuff is not easy!….

Taking Bloods – “Can We Do It Differently With Dementia?”

Bob had to have some blood taken recently and a pathology agency person arrived at the nursing home to make this happen. Myself and another carer were asked to hold Bob’s wrists as he sat in a chair. The lady told Bob what she was going to do and then placed the needle in his arm and Bob did not like it at all. He became tense and resisted, then as we all clamped down on him he became combative. No-one was hit or hurt but the potential was definitely there.

So why did this task turn pear shaped? I keep coming back to looking at events from the person with dementia’s point of view. So how did Bob see this event?…

Firstly, he had a stranger ask him to leave the lounge room (where he was laughing and enjoying his coffee and cake) and go to his room. He was then placed in a chair, was told the lady’s name and she explained she was going to “take some blood”. 10 seconds later both his wrists were grabbed and he had 3 people appearing to restrain him and hold him down.Bob would have been thinking “Is this a code black?..Am I going to be held down against my will again?….I need to fight back!”. Bob tensed up,his muscles tightened, the needle went in, a small amount of blood was taken, then the struggle began, the lady stepped back and things flared up for a split second. The lady was not happy and said “he is very strong, I don’t like what I just saw and he should be sedated more in future”.

I then decided to walk Bob out of the room to change the environment, I calmly spoke with him to de-escalate him, and he now had blood all over his shirt. Bob said to me “look what you have done to me!”. I felt I had to change his shirt asap to avoid the reminders of the incident. He allowed me to do this and was happy again within 5 minutes. (a very quick de-escalation indeed).

So how could we have done this differently?

– Firstly the lady taking the blood had no rapport with Bob and probably could have chatted some more, and got to know him. An extra 5 minutes of chit chat and a look through his photo album may have helped this situation. (it was too clinical)
– By holding his wrists down BEFORE the needle went in, made Bob react negatively making the whole process more difficult.
– Our focus was on protecting the person taking the blood (which is understandable) , but she was actually more at risk by having us “set the wrong scene” prior and restraining him. Of course Bob’s history would have warranted the action taken, but I know a better result would have occurred if we had a more ‘relaxed vibe’.
– Distraction has worked well in the past when taking bloods. I normally rub his knee quite vigorously and talk about old football injuries with him as the blood is being taken from his arm. This diversion takes the focus off the needle.
– Two people maximum should be involved to avoid “over crowding” and preferably have someone who knows Bob take the bloods.

*There are many ways to look at an incident like this, and there are no 100% black and white answers here. It does highlight once again that when dealing with a person with dementia, having their point of view ‘front of mind’ usually produces a better outcome.

*My Golden Rule – create relationship first, assess the risks, then do task (or defer it).

What is Life Like For Our ‘LGBTI’ Community in Aged Care?

I have to admit I have not yet come across any people within aged care from the LGBTI (Lesbian, Gay, Bisexual, Transgender & Intersex) community. I have always wondered whether they have extra stigma to deal with on top of the stigmas associated with dementia?

I would imagine there could be some homophobic attitudes and ignorance from carers, people with dementia and other family members, in our aged care homes. On the flipside, I have also heard a story of a man that only felt safe to ‘come out’ once he entered an aged care facility.

Are transgender people considered by their birth gender? Are there specific policies for LGBTI people in aged care homes? Is there any training on this topic within Cert 3 (Aged Care)? As the background and personal history of a person with dementia is critical to handling behaviours (and providing person centred care)…does this still apply to the LGBTI community?… and to what extent?

As you can tell I have very little knowledge in this area (plus plenty of questions), but thought it was important to have the conversation. I believe that a ‘dementia friendly community’ should be one that is ‘all inclusive’ and no-one gets left behind. I am just interested to know if our LGBTI community are being considered and treated equally in our aged care system in 2016?

Dementia & Driving Through Shop Windows

 

Too many times on the news there are reports of elderly people (or people with dementia) crashing their cars into shop windows after ‘putting their foot on the wrong pedal’.

In my opinion I believe that once a formal diagnosis of dementia has been given, the car keys should automatically be required to be taken away.

Whilst there is an argument that the dementia may only be mild or in early stages, it still brings an unacceptable level of risk to the person with dementia and also the community.

In hindsight when Bob was driving, we were probably not quick enough to remove the keys and he drove through two red lights. Imagine if he had crashed and been badly injured , or worse hurt or killed someone else?

If their is cognitive decline or memory issues with a person – being behind the wheel of a car is not the place for them to be. It may be hard to approach the subject at the time, but it is a conversation that needs to be had.

For some tips on how to remove the keys – Click the following link:

http://alzheimers.about.com/od/communication/fl/How-to-Talk-to-Someone-with-Dementia-about-Quitting-Driving.htm

 

Sticking To An Activity – How Do We Branch Out?

I took Bob for a walk this morning and noticed that he really enjoyed picking up twigs every few steps , breaking the twig into smaller pieces then placing it back on the ground. We only walked for about 100m as he kept stopping and bending over to pick up the sticks.

I want to capitalize on this activity as it totally engages him and makes him feel happy. As most of you know Bob is really difficult to engage as he rarely watches tv, does not read books (besides his photo album) and has an attention span of about 6 seconds with activities.

He does however love his music and is often dancing with carers and residents.

Anyway, back to the twigs. I thought about bringing a bag with us for when we go walking so we can collect the sticks and use them as ‘kindling in my combustion heater’ . I want him to know that he is doing a worthwhile activity that I can benefit from, and he feels good about helping me.

My question today is ” Knowing that Dad likes doing this activity with sticks, what would you recommend as ideal activities that are along the same theme or may be tactile in a similar way?”……..

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Transition Techniques to a New Facility

 

Bob is now back in his new room in his nursing home and is loving it. After 8 weeks in hospital we were nervous to see if he could settle back and be calm. I am very pleased to say we have had 2 amazing days with him, smiling, some tears( happy ones) and he laughs every time he looks at me. ( not hard to do…:-))

The transition has been successful due to the nurses and care staff being aware of changes documented in his personal profile, plus the kind ladies at DBMAS have placed some new signage up to help Bob find his room and make him feel special.

All the staff say ” Hello Bob” as they pass him and are very caring to his needs.

Well done all on a great team effort.
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Another Valuable Dementia Lesson Learnt

 

A few months back many of you would remember a post that I wrote regarding our family reaching a pivotal turning point in Bob’s dementia journey. I made the comment that we needed to shift our care from one of fighting for Dad’s well-being and quality of life to one of simply providing comfort and care with a palliative mindset. I felt we had ‘lost him’ completely. Well I am pleased to say that I was wrong on that occasion…..

Just to recap – several months back Bob had erratic behaviour issues and was becoming increasingly violent and unpredictable. He had a very sore toe with the toenail lifting and was suffering with severe pain with it. I called the doctor and he prescribed a Norspan patch for his shoulder which can be an effective pain drug absorbed through the skin. Unfortunately Bob is extremely sensitive to medication changes and his behaviours became ‘outta control’ and he was doing unacceptable things and I felt that his brain was so damaged that he would not recover and become palliative.

He was transferred to the RAH and spent 5 weeks in a medical ward as there was no beds in the geriatric ward. He manically walked the ward all day and night with a nurse and/or family member in tow. We had another 12-15 code blacks during those 5 weeks and he was eventually transferred to the Repat Hospital – Ward 18. The environment was quiet, with only 8 patients and each person has an experienced nurse monitoring them across every 15 minutes. Decisions are then made to either return the person to their nursing home, ( or residence) or be transferred to a mental health facility.

Yesterday we found out that whilst Bob has declined significantly he has been given the green light to be transferred back to his nursing home on MONDAY to a brand new room and ward . He will be warmly welcomed back by the residents and staff. We are far from being out of the woods and have to hope his behaviours continue to subside. His warm smile is back.. he laughs often…and I am hoping we can keep him out of the hospitals from now on. fingers crossed……

The Lessons?….. any future changes to medications need to be done gradually and with extreme attention placed on looking for any side effects over several weeks. The big lesson I learnt however was that there is always hope for a better quality of life if you NEVER EVER GIVE UP and keep searching for answers and give it EVERYTHING YOU HAVE.

“C’mon Dad……Let’s do this!!!!”